Life with a rare syndrome

Peutz-Jeghers syndrome once defined my life and death.

June 4 is always a tough day for me.

If we know each other well enough, chances are you have heard me talk about my mom. She passed away 21 years ago today.

I bring this up because she had Peutz-Jeghers syndrome (PJS), a rare and often missed or misdiagnosed condition. Fewer that 7,000 in the United States have it.

I will not go down that rabbit hole, bu…